Conference Papers

"IGENE symposium, Abstract summary, Prof Cathy Herbrand: This paper draws on a broader ESRC-funded interdisciplinary project exploring the social, ethical and economic issues surrounding the emergence of ECS in the UK. It will present preliminary findings of interviews conducted with key stakeholders (policy, commercial, patient group, professional) who are involved or have a particular interest in the regulation of reproductive genomic testing in the UK. Combined with a scoping review of policy papers on ECS, it will situate the emergence of ECS as a novel reproductive screening technology within the UK policy and practice landscape and identify the specific issues raised by ECS in this context. It will also explore participants’ positioning regarding the potential future use of ECS in the NHS or as a population screening tool, with particular attention on the tensions these options may raise. Overall, the paper will provide a critical perspective on the governance of this emerging technology in the UK."

Preconception expanded carrier screening in the UK

Cathy Herbrand (De Montfort University), 24 November 2023

Invited speaker at the IGENE symposium Mapping Genetic Screening: Between Public Health and Personalised Medicine

Exploring attitudes and experiences with reproductive genetic carrier screening among couples seeking medically assisted reproduction: a longitudinal survey study,

E. Van Steijvoort, M. Cassou, C. De Schutter, E. Dimitriadou, H. Peeters, K. Peeraer, G. Matthijs & P. Borry, 2024

‘Disease-free imaginaries?
The promises of expanded carrier screening’

C. Herbrand, N. Hudson and K. Fearon, 2023

‘Selectively stratified: the use of expanded carrier screening in the general population’. Paper presented at the international conference ‘Reproductive Futures: Emergent Injustices, Hopes and Paradoxes’

C.Herbrand and N.Hudson, 2022.